Posterous theme by Cory Watilo

A letter to the Observer

Dear Observer,

Regarding: The worst year of my life: cancer has my family in its grip - http://www.guardian.co.uk/theobserver/2011/nov/20/a-family-gripped-by-cancer 

As the daughter of a man with cancer I'm always interested to read about new therapies and scientific breakthroughs into cancer treatment. However, I felt I must write to you about the article by Luke Bainbridge, the uncle of Billie of Billie's Butterfly fund. 
I feel that the publishing of this article without any context is irresponsible and dangerous and that you're actually missing a bigger story. Whilst I'm thrilled that so many celebrities have got behind Billie's cause, I am saddened at what and who the money is going to. If only it was going to a better cause than this clinic.
Irresponsible and dangerous

Dr Burzynski has not, so far, published any results for his trials; trials conducted over thirty years. His studies have not been published or peer reviewed. Here's what Cancer Research UK has to say about his research:
Some people promote antineoplaston therapy as a cancer treatment. But available scientific evidence does not support claims that antineoplaston therapy is effective in treating or preventing cancer. 

Although Dr Burzynski’s own clinic have reported positive results for these trials, no other researchers have been able to show that this type of treatment helps to treat cancer. Other researchers have criticised the way the Burzynski Clinic trials have been carried out. Despite researching this type of treatment for over 35 years, no phase 3 trials have been carried out or reported. (My emphasis) (Retrieved 25 Nov from http://cancerhelp.cancerresearchuk.org/about-cancer/cancer-questions/what-is-antineoplaston-therapy )

Without any context to this article, others whose children are stricken with similar afflictions are likely to want to get the treatment that is talked about in the article. This is false hope. Often, these alternative therapies are undertaken by desperate families who eschew conventional treatment in favour of something with little to no evidence of efficacy.
Quackwatch goes into the science behind why it's bunkum (and Burzynski's credentials, or lack thereof) in great detail, here: 
The bigger story

  • The FDA in the US have not approved the use of antineoplaston therapy for use in humans as a drug treatment. Burzynski is using them in his own trials, for which he is charging phenomenal amounts of money, without having proven anything. These are bogus trials: set up purely due to the fact the treatments are unlicensed, and so cannot be legally administered other than in a clinical trial.
  • (From WikipediaBurzynski’s use and advertising of antineoplastons as an unapproved cancer therapy were deemed to be unlawful by the U.S. Food and Drug Administration (FDA) and the Texas Attorney General, and limits on the sale and advertising of the treatment were imposed as a result. In 1994, Burzynski was found guilty of tax insurance fraud for filing a claim for reimbursement by a health insurer for an illegally administered cancer treatment.
  • There's a film and a book that are convincing people around the world that conventional cancer treatments don't work. This is highly dangerous and characteristic of alternative medicine purveyors who are doing their best to undermine the efforts of real scientists and doctors who are fighting against the horrendous illnesses we call cancer. Stating that there's only one real cause of cancer is another claim that's characteristic of quacks, yet it is known that cancer isn't actually just one disease.
I urge you to write another article, with the facts about Burzynski laid down for all to see. It's a difficult subject, especially given that many of his patients are children. However, I believe that it's extremely important that people aren't mislead by heart-wrenching articles about the victims of the cruelty we call cancer. There's a wider, more important issue at hand: this man is making money from people's grief, vulnerability and ignorance. 

If you need more context on this, there are blogs on the subject all over the place - something the mainstream press is missing out on. This one gives a very good rundown of extra links, for context.

Yours faithfully,
Tannice

 

Repost from The Custard TV

Image Credit: Channel 4

Derren wields a croquet mallet in front of the 'murder' scene

As predicted, Derren Brown's shows always provoke controversy, but has he gone too far this time? 

 

I'm a skeptic and an ex-psychology student. I like to see evidence for claims of special ability whether that be claims to be able to speak to the dead or claims to treat illnesses with pseudoscience. Derren Brown is a bit of a poster-boy for the 'skeptical movement', the existence of which is debatable. However, with these newest experiments, Derren Brown has upset more than a few people. I should explain. This post will be addressing the 'if' questions. I'm always questioning the veracity of Derren Brown's claims of misdirection, psychological illusion and showmanship. After all, Derren claims not to use any stooges or TV tricks to do his work, but then again, it was revealed that his 'Russian Roulette' stunt never involved any risk whatsoever. Another couple of heroes of mine, Penn & Teller, also say that they never do anything that will pose a danger to them or their audience. However, if we take Derren's claims to have actually provoked his subject, Jody, to have admitted to a fictitious murder seriously, ethical questions are raised.

 

SPOILERS FOLLOW 

 


 

What happened?


Part one: guilt

The basic premise of the show, for those who haven't watched, is that Derren was to create guilt in his subject so that he would admit to a murder that hadn't even occurred. Jody, his malleable, somewhat uninformed participant, had applied to be in one of Derren's shows and been rejected. He'd also been through vetting procedures to ensure he was psychologically sound enough to be toyed with in the manner Derren had planned. Jody attended a fake conference and was induced, in the manner of Pavlov's Dogs, to respond to others' guilt, and his own, by classical conditioning. Every time guilt was felt or discussed, Jody was squeezed on the shoulder and a bell was sounded through the house.

 

Jody was also star struck by his favourite Aussie comic, Tim Minchin, who pretended to be upset by Jody. Jody was told he'd used a particularly rude word to describe Tim by accident.

 

Part two: memory

Once guilt was 'conditioned' in to Jody, the second part was deployed: make Jody doubt his memory by swapping his plate while he was distracted, having the speakers subtly and covertly change their clothes and by having Jody think he'd stolen a pearl necklace.

 

Part three: motive

Derren also introduced a mild motive for Jody to dislike his potential victim: he was irascible, rude and a cheat at croquet. The third part was to get him drunk and move him outside so he'd wake up believing he'd lost his memory of the boozy night before and he'd believe that he could potentially murder someone.

 

Was it a hoax on the audience?

I'm not entirely convinced that Jody wasn't a plant. There are several posts on forums around the net that raise various questions about the elaborate staging and whether Jody was supposed to confess to the 'murder' at the Country House where the fake conference was held and then be arrested and taken to the fake police station or whether things just went conveniently against Derren's plan and Jody ran to the police station to create some more tension for the benefit of the programme.

 

As Ash Pryce, a fellow skeptic and actor, says;

 

"By dressing it up as using psychology and science he is giving it a legitimate veneer, and one that people believe in[...] is this Brown’s fault? If the show started with an onscreen disclaimer stating “This show is for entertainment purposes only, any claims should be investigated fully before being believed”, I doubt it would damage his reputation, but that disclaimer is better than 'I’m going to lie to you'”. *

*For more information about entertainment disclaimers and their worth when it comes to claims of psychic ability, go here



Ethical ponderings: where to draw the line?


 However, if we believe that Jody was indeed really not in on the programme's premise, I have some questions. What are the ethics of putting someone under so much duress? Jody was an excellent actor if he wasn't real - something revealed by the somewhat hammy acting of the stooges that surrounded him around the Country House. After all the shenanigans of the changing plates and the swapping of a speaker's tie from red to yellow, Jody finally admitted he may have stolen a pearl necklace, despite not remember taking it (it was planted in his room by Derren, where Jody then was stunned to find it). At the point where Jody admitted he might have stolen the necklace, Derren had proven his point: it is indeed possible (if you bought in to the premise) to get someone to admit to something they'd not done. Making an innocent (and very amiable) man believe that he had murdered someone was unnecessary.  Jody looked under huge duress when told that the man had died. He was crying whilst waiting for his turn to speak to the police officers who were interviewing everyone.

 

Having been left outside to wake up (under hypnotism, apparently - something Derren doesn't entirely believe in, as he confesses in Tricks of The Mind**), Jody was concerned he had no alibi and that the other attendees had seen him outside.

 

** - comparing hypnotism to 'magic' (page 134, hardback edition, published 2006), Derren says: 

The hypnotist uses certain methods, or the subject shows certain behaviours, which when put together create an overall effect we can label as 'hypnosis'. We can comfortably call it that without needing a single definition of what is really going on. [In] the same way that a magician might secretly apply 'magical' methods or trickery outside a performance environment to bring about some desired result we wouldn't really think of as magic [...] so, too, seemingly, hypnotic techniques can be employed covertly in a way that might also make us question whether there is a better word to describe them in that context.

 

Contrasting views


From my own study, I find it difficult to believe that any screening process could accurately predict someone's behaviour in such a (purportedly) real situation. But others disagree. Simon Clare, who runs one of my local skeptic groups, said:

It did get rather close to the wire, especially as it neared the end of course, but all along, I knew [..] as soon as he showed any sign of being irreversibly affected, they would have stepped in and stopped the whole thing. My sensation of drama and of fear for Jody was part of an illusion. They are experiments in that there's a chance they won't work, but that's about it. [We shouldn't] judge it by the same standards as proper experiments. I was satisfied by the steps taken to reduce the chance of permanent damage [...]. Judging by [Jody's] reaction, they did this very well. I am also content that Derren Brown has demonstrated an acute ethical awareness.

I asked Keir Liddle, a PhD student of psychology, for his opinion of the vetting procedures: how could any psychologist predict the harm done to someone in such an unusual situation? Keir was unhappy with Derren's programme, saying Derren's experiments have thus far "reduc[ed] some important areas of psychology as a tool for cheap misdirection or clumsy moral messages" and added that Derren's shows have the "pretension of being about important social issues and behaviours". Keir was explicit about his feelings about TV psychologists, saying Jody was put "under extensive psychological pressure and [was] caused considerable upset. All to make him believe that he had it in him to kill a man and forget about it."

 

Keir was, like me, also concerned that no serious or ethical research would ever be conducted in this way without it being halted due to "extreme duress and psychological strain". There were some ethically and morally reprehensible studies in the early days of psychology research (see Little AlbertHarlow's Monkeys and the Stanford Prison Experiments for more information) but they'd never be permitted by the British Psychological Society today; an experiment that involves such ethical concerns would need to have an exceptional reason to even be considered.

 

How should studies or 'experiments' be conducted?


Psychological experiments are subject to rigorous controls which include the standards of informed consent (something Jody never gave, given he thought he'd been rejected), giving the participant the knowledge they may leave the experiment at any time and proper debriefing after the experiment, to ensure the participant leaves the same way they went in: psychologically sound.

 

Given that we already know that thousands of people across the world already admit to crimes they didn't commit, for various reasons, what reason, other than ratings and polemic, could there be to do this to someone? I'd be fascinated to know what kind of screening process reality show participants and those who apply for Derren's shows go through. What are the ethics of psychologists and psychiatrists who agree to take part in such a show? What would have happened if Jody had behaved differently - were there trained professionals on hand to deal with that? What are the legal implications? Surely, with no informed consent, despite any agreements Jody would have signed beforehand, Jody would have had some legal avenues to pursue if he'd suffered harm? None of this was addressed, and this strikes me as irresponsible.

 

I'd like to finish this piece with another quote from Keir and invite viewers and professionals to comment below if they have any views about what went on in the show. Where should TV programmes, commissioning editors and channels draw the line when it comes to psychological 'experiments'? After all, Keir says, "if you want to do highly dubious, potentially unethical research, it seems you'd be better going to Endemol, or similar, rather than a reputable funding body." Is he right?

 

Originally posted by Tannice for The Custard TV. Follow Tannice on Twitter here.

The 'Psychic Sally' adventure

Girls-crying

On Monday, @xVirtutex (Myles) and I decided to go down to Guildford's GLive venue to speak to Sally Morgan fans. On the 1st October Simon Singh @SLSingh had tweeted that Sally had seen him coming and blocked him before he'd had the chance to even follow her (spooky, eh?) so I decided to follow @SallyMorganTV for laffs. Little did I know she'd be coming to the home of the Guildford SITP - an event that I kind of help out with running. 

Reading about 10 minutes behind tweets, @SallyMorganTV said "Another new venue, at the G Live in Guildford tonight. It's a sold out show. Look forward to seeing you there xSx"

Jokingly, I tweeted "Sally Morgan's in Guildford... tonight? Why did no one tell me!" and "Maybe I should print out some @ProjectBarnum posters and give them to the audience?"

Sm_twitter_pic
I should point out that I wasn't entirely serious. At such short notice  there was no way I'd get there (45 mins drive from my home) in time to speak to them before they went in. However, I did get some encouragement from Alice Sheppard (@penguingalaxy), Simon Clare (@evil_si) and Hayley Stevens, (@HayleyStevens/@ProjectBarnum) who founded Project Barnum

Projectbarumlogo

Project Barnum is a campaign to get theatres to understand the kind of psychic trickery that many Mediums and Psychics use in their shows & a free online resource for info on psychic trickery and how you might be being misled

Myles was kind enough to volunteer to come along to gallantly defend me from any kind of shenanigans so we put on our trainers in case we needed to run away (we definitely didn't) and went on down.

Of course, being a sold out show, there was absolutely nowhere to park, so we settled on York St parking and went away to a nearby pub to regroup, talk about psychic practices (Myles is not particularly au fait with the skeptic movement... yet). Returning to the venue, we saw streams of fans pouring out, towards the very car park we had parked. Fortuitous.

I nearly lost my bottle but my curiosity got the better of me and I approached a group of three women. My cold reading skill told me that they were clearly related. Breezily, I asked them if I could ask them a few questions.

They had indeed been to see Sally, they had heard the media reports of her alleged cheating, but they weren't put off by them. Sally had apparently covered that in her show and moved on to what she does. They hadn't received a reading themselves, but they were hoping to hear from their deceased grandmother/mother. I asked them whether they thought it was for entertainment purposes but they clearly didn't believe that. They seemed to understand that theatres had to say it was for entertainment purposes only to cover themselves, but didn't recall that there was any information about that on the tickets or at the venue. After asking them a few more questions about whether they believed in Sally's powers (they were paying for their parking), we skipped off. I was fairly happy to have got some answers to my questions, but they were perplexed as to why we asked them. It probably helped that we only asked questions, we didn't try and push our agenda. That wasn't really our aim. 

Their curiosity piqued, they caught up with us, asking why we wanted to know. Myles had a few posters from the Project Barnum website in his hand and we showed them what we had.
That's where things got interesting. The older lady said that she didn't believe that a grandmother could be lying on stage. 'Argumentum ad twinset and pearlsum', said @Mickvagg.
Oldladiesnotexempt
Indeed - although this is actually argument from personal incredulity with a bit of emotional appeal thrown in. The lady's daughter seemed to see the fallacy in her mother's argument and pointed out that old ladies and old men sometimes do unspeakable things. Having a child who then has another child does not mean that you are immune to doing things that are immoral or illegal or even just a little naughty.

After speaking to them a while and gently putting my point across about the techniques that some psychics and mediums employ (using the 'Spot a cheat' sheet from Project Barnum): 

Spotacheat
credit: ProjectBarnum.co.uk

and talking about Randi's million dollar challenge they suddenly seemed a little uncertain about Sally's powers and we gave them another poster with a link to Project Barnum's website to seal the deal. 

We later talked to a group of two women and three guys. One of the men seemed slightly taken aback that someone would approach him to ask questions and Myles and I both said later that we were worried he might kick off. But he didn't. He was aware of P.T Barnum (the man, the legend) and appreciated the link. His wife was a tarot reader, which set my skeptical brain off a little. I didn't go into tarot reading, but she seemed rather skeptical of it herself. They too weren't aware of the 'entertainment only' caveat but did seem a little on the fence about the abilities of psychics, which leads me to ask why someone would spend around £25 quid on a ticket if not for entertainment value? We had a jovial conversation and they went off to eat their McDonald's meal in peace, with another poster that linked to the website.

By the time we'd finished speaking to those people, most of the other fans had gone but we felt proud to have said our piece and maybe made a little dent in the confidence that those 8 people had in the power of the Psychic to reach across to the other side. Worth the 90 minutes of driving? Absolutely. 

 

Acupuncture and the ASA

Is it time the ASA told us how it makes its decisions?

After @landtimforgot's successful campaign to get the MHRA to publicly list its registered homeopathic 'medicines' and a quick chat with @jimbobthomas at @GuildfordSitP, I decided to write about some correspondence I recently had from the ASA.

I complained about my local acupuncturist, who was making some claims about treating, amongst other things, asthma and gallstones (he has now changed his website). Having suffered from both conditions in the past, I know that both can be life-threatening. Thankfully, I seem to have stopped suffering from asthma and, due to a Cambridge surgeon, no longer have a gall bladder to fill up with nasty stones. Asthma can kill: no doubt about that. Gallstones can also kill you, if left untreated, due to infection, although this is rare. They also hurt like... well, women who've been through childbirth and had biliary colic told me they'd rather pop out some more kids than go through it again.

You can view the images that I sent to the ASA about my local acupuncturist here.

(thanks to @Simon_Perry for creating Fishbarrel, which you should install immediately, should you wish to make complaints to the ASA)

So... on to the ASA. They wrote to me to tell me:
"CAP and the ASA have previously seen evidence that acupuncture can help treat dental pain, nausea and vomiting, provide short-term relief of tension-type headache, migraine headaches relief, temporary or short term relief of low back pain and provide temporary adjunctive treatment for osteoarthritis knee pain. The ASA therefore accepts that acupuncturists can make the above claims about their therapy. However, the complaints we have received highlight that some acupuncturists are making claims to treat other medical and health conditions for which we have not seen evidence.
We intend to take one complaint about advertising claims for acupuncture forward as a formal investigation, which will be chosen on the basis that the claims made in the advertising are representative of the types of advertising claims made across all the complaints we have received. We will ask the advertiser in that case to provide substantiation for their claims, and we will publish our findings on our website as a formal adjudication. We will then be able to follow up any further complaints we receive about efficacy claims for acupuncture (for which we have not seen evidence), as a compliance issue."
I was surprised to note that CAP and the ASA have seen evidence to substantiate the claims acupuncturists make about the above list, so I had a look around, wondering what I could possibly be missing. Had new evidence come to light? Were there new studies? I thought that it was likely I would have heard about this new physiological basis for acupuncture, on Twitter, especially from Simon Singh and Edzard Ernst, writers of 'Trick or Treatment'.

I found nothing that seemed to properly substantiate these claims in terms of studies. So I wrote to the individual at the ASA again:
"I note that in your letter that you write that CAP and the ASA have seen evidence that acupuncture can treat dental pain, nausea and vomiting, tension-type headache, migraine, low back pain and oesteoarthritis knee pain and that therefore acupuncturists can make claims that they treat this on their marketing material and websites.
I would be very interested in the specific evidence that you have received to this effect and would politely request you to point me in the direction of this evidence as I'm sure that it could put my mind at rest as to the efficacy of acupuncture in these circumstances."
I thought that, given these are medical claims, there would be some kind of resource the ASA provide that say what they base their decisions on; maybe even some links to peer-reviewed articles? Who, on behalf of the ASA, evaluates the evidence? After all, it's not always easy for the layman to see through some methodology: even having studied research methods at uni, I often find my evaluation skills lacking and somewhat lazily rely on people like Ben Goldacre to re-explain where there are holes in scientific data collection methods, or a skew in population sampling, or other confounding variables. Having looked at a job profile for a position with the ASA in recent months, I note that a science-based education is not mandatory (not that I believe it should be). It's just an observation. Who is responsible for deciding what alternative therapists can claim to treat? The ASA's biography list of Council Members, who decide on each advert, doesn't specifically include anyone with a medical or scientific background. However, the senior management team does have one person who has a degree in chemistry. Although, when I asked on Twitter, someone who saw my question said that there was a possibility they did call on scientific experts. Just to be clear: I am not decrying the work of the ASA here, just asking some questions.

Anyway, I received a response that seemed to me, at least... a bit... well, I don't know... you read it:

"The ASA has almost 50 years experience of investigating advertising claims, and CAP and the ASA are experienced in assessing the evidence sent to us in support of advertisers’ claims, including evidence for claims to help or treat medical conditions. We assess both the content and the methodology of the research in our assessment of whether the evidence backs up the advertising claims. Our current position about advertising claims for acupuncture reflects our assessment of the evidence we have seen for the use of acupuncture in the treatment of certain conditions and it does not form part of our current investigation. Please note that we are not in a position to forward that evidence on to you."